In this film, we meet Willow, Leo, and Thiago—three children living with Arginase 1 Deficiency (ARG1-D). Their families share their experiences, highlighting the early signs of the condition, the challenges of receiving a diagnosis, and what everyday life looks like with this rare, progressive metabolic disorder.
These stories help raise awareness of a condition that is often misunderstood—and underscore the importance of early recognition and ongoing support.